TD Awareness

Tardive dyskinesia (TD) is an involuntary movement disorder that is associated with prolonged use of certain mental health medicines (antipsychotics) that can be used to treat bipolar disorder, depression, schizophrenia, and schizoaffective disorder. TD is characterized by uncontrollable, abnormal, and repetitive movements of the face, torso, and/or other
body parts.

 
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Neurocrine Biosciences Supports TD
Awareness
Week

Neurocrine Biosciences is committed to bringing awareness to TD every day, but especially during Tardive Dyskinesia Awareness Week (TDAW). Every year, we recognize the first week of May as another opportunity to raise awareness and education about TD.

We aren’t the only ones who support this mission. Over the years, all 50 states, Washington, DC, and various mental health advocacy organizations have declared the first week in May as TD Awareness Week. To follow and join the conversation on social media, search for #TDAwarenessWeek.

The Impact of TD

TD affects approximately 600,000 people in the U.S., and nearly 70%, or 7 out of 10 Americans living with TD, have not yet been diagnosed. Although TD can look or feel different from day to day, it is a chronic condition and symptoms may be persistent.

TD movements may be rapid and jerky, or slow and writhing. In a survey, people with diagnosed or suspected TD reported the movement disorder moderately to extremely affected them in the following areas:*

44% Ability to work

51% Ability to sleep

44% Ability to leave the house

TD can impact people physically, socially, and emotionally. Symptoms can make them feel embarrassed or judged by others and, in some cases, lead them to withdraw from society and isolate themselves from the outside world.‡§‖¶

*
The survey evaluated 51 patients diagnosed with TD and 155 patients who were suspected to have TD, as they experienced involuntary movements.

Base: Patient ATU 2022: Target patients (n=250). Responses based on survey question: Since first experiencing involuntary movements, how has your ability to perform the following daily activities been affected, if at all? Rating scale: 1 to 5 when 1 means “not affected at all,” and 5 means “extremely negatively affected.”

Ascher-Svanum H, Zhu B, Faries D, Peng X, Kinon BJ, Tohen M. Tardive dyskinesia and the 3-year course of schizophrenia: results from a large, prospective, naturalistic study. J Clin Psychiatry. 2008;69(10):1580-1588. doi:10.4088/jcp.v69n1008

§
Boumans CE, de Mooij KJ, Koch PA, van’t Hof MA, Zitman FG. Is the social acceptability of psychiatric patients decreased by orofacial dyskinesia? Schizophr Bull. 1994;20(2):339-344. doi:10.1093/schbul/20.2.339

Yassa R. Functional impairment in tardive dyskinesia: medical and psychosocial dimensions. Acta Psychiatr Scand. 1989;80(1):64-67. doi:10.1111/j.1600-0447.1989.tb01301.x

Task Force on Tardive Dyskinesia. Tardive Dyskinesia: A Task Force Report of the American Psychiatric Association. American Psychiatric Association; Washington, DC: American Psychiatric Association; 1992.


FAQ

What is TD?

TD is an involuntary movement disorder that is associated with prolonged use of certain mental health medicines (antipsychotics). TD is characterized by uncontrollable, abnormal, and repetitive movements of the face, torso, and/or other body parts.

Who is at risk for developing TD?

People living with a mental health condition, such as bipolar disorder, depression, schizophrenia, and schizoaffective disorder, who take antipsychotics for a prolonged period of time may develop TD. Other prescription medicines used to treat upset stomach, nausea, and vomiting (metoclopramide and prochlorperazine) may also cause TD. Other factors may also play a role in an individual’s risk for TD:

Being 55+ years of age or older
Having a substance use disorder
Being postmenopausal

Why is it important to prioritize TD awareness?

Despite the number of people impacted by the condition, many people are still unfamiliar with TD. However, for people living with TD, their families, and their care partners, it is important to know that they are not alone. Approximately 70%, or 7 out of 10 people living with TD in the U.S., have not yet been diagnosed. Increasing awareness will help more people get the diagnosis and help that they need.

When is TD Awareness Week?

Tardive Dyskinesia Awareness Week (TDAW) is the first week of May. May is also Mental Health Awareness Month, which brings attention to the 1 in 5 U.S. adults who live with a mental illness. As we work to increase awareness and support for those impacted by mental health conditions, it is important to remember that those who are living with a mental illness and taking antipsychotics for a prolonged period of time may develop or already have TD.

How many states have recognized TD Awareness Week?

All 50 states and Washington, DC, have declared the first week in May as TD Awareness Week.

Where can I learn more about TD?

To learn more about TD and hear real stories from people with TD, visit TalkAboutTD.com. Healthcare professionals can also visit MIND-TD.com to learn more about TD.

Download these resources for more information about TD and
TD Awareness Week.

Female doctor talking to father and son