Consumer Health Data Privacy Notice
Consumer Health Data Privacy Notice
Effective as of October 1, 2026
This Consumer Health Data Privacy Notice (“Consumer Health Data Privacy Notice”) applies to the extent required by applicable U.S. state laws with respect to consumer health data (“Consumer Health Data”) as applicable laws may define that term to individuals located in those U.S. states. This Consumer Health Data Privacy Notice supplements our general privacy policies. In the event of a conflict between our relevant privacy notice (for example, our website Privacy Notice), and this Consumer Health Data Privacy Notice, the Consumer Health Data Privacy Notice applies to the extent that it is consistent with applicable U.S. state law.
This Consumer Health Data Privacy Notice describes how Neurocrine Biosciences, Inc. and its subsidiaries and affiliates (“Neurocrine,” “we,” “us” or “our”) processes Consumer Health Data that we collect via our websites, associated marketing activities and any other activities described in this Consumer Health Data Privacy Notice (collectively, the “Service”).
Consumer Health Data we collect
Consumer Health Data you may provide to us through the Service or otherwise includes:
Health-related data, such as your medical conditions, diagnosis, treatment history, medications (including Neurocrine products), symptoms, and other health-related data you provide in connection with our products, patient support programs, or medical inquiries, including biographical data.
Other personal information that is associated with Consumer Health Data.
Consumer Health Data we collect automatically
When you use our Service, we collect some information through certain technical tracking technologies that may be considered Consumer Health Data. For example:
Device data, such as your computer or mobile device’s operating system type and version, manufacturer and model, browser type, screen resolution, RAM and disk size, CPU usage, device type (e.g., phone, tablet), IP address, unique identifiers (including identifiers used for advertising purposes), language settings, mobile device carrier, radio/network information (e.g., Wi-Fi, LTE, 3G), and general location information such as city, state or geographic area.
Location data, which may be approximate (for example, as inferred from network data or device settings) or precise (if and when you authorize the Service to access your device’s location).
Communication interaction data such as your interactions with our email, text, chat or other communications (e.g., whether you open and/or forward emails) – we may do this through use of pixel tags (which are also known as clear GIFs), which may be embedded invisibly in our emails enabling us to detect if you have opened or forwarded a message.
Online activity data, such as pages or screens you viewed, search history, how long you spent on a page or screen, the website you visited before browsing to the Service, navigation paths between pages or screens, information about your activity on a page or screen, access times and duration of access, form interaction, and whether you have opened our emails or clicked links within them.
Technical and diagnostic data, such as server log files, error reports, crash reports, diagnostic information, performance data, timestamps, referring URLs, and other information used to maintain the security, availability, and performance of the Service.
Consumer Health Data we may create, infer or generate
We may create, infer or generate Consumer Health Data from other data we collect, including using automated means to generate information about your likely preferences or other characteristics. Inferential data may include your product/service interests and other health-related data.
Sources of Consumer Health Data
We may collect Consumer Health Data directly from you, from your interactions with the Service, from public sources (such as government agencies, public records, and social media platforms), data providers (such as information services and data licensors), partners (such as marketing partners and event co-sponsors), healthcare providers, service providers (entities or individuals that provide services on our behalf), and business transaction partners (such as entities in an actual or prospective business transaction).
How we use your Consumer Health Data
We use Consumer Health Data for purposes described in this Consumer Health Data Privacy Notice or as otherwise disclosed to you. For example, we use Consumer Health Data for the following purposes:
Service delivery and operations, including to provide, operate, and secure the Service (including to provide and manage patient support programs, safety and quality efforts), and communicate with you regarding the Service.
Health-related data, device data, location data, communication interaction data, online activity data, technical and diagnostic data
Improvement and analytics, including to improve our Service and business and help us understand user activity on the Service, including which pages are most and least visited and how visitors move around the Service, as well as user interactions with our emails, and to develop new products and services.
Health-related data, device data, location data, communication interaction data, online activity data, technical and diagnostic data
Marketing and advertising, including direct marketing by us and our third-party advertising partners in compliance with applicable law.
Health-related data, device data, location data, communication interaction data, online activity data, technical and diagnostic data
Research and development, including to develop, analyze, and improve our products and services, to support pharmacovigilance and drug safety monitoring, and to conduct or support medical and scientific research. As part of these activities, we may create aggregated, de-identified, or other anonymous data from personal information. We may use this anonymous or de-identified data and share it with third parties for any lawful business purposes.
Health-related data, device data, location data, communication interaction data, online activity data, technical and diagnostic data
Compliance and protection, including to comply with applicable laws, lawful requests, and legal process, such as to respond to subpoenas, court orders, investigations or requests from government authorities; protect our, your or others’ rights, privacy, safety or property (including by making and defending legal claims); audit our internal processes for compliance with legal and contractual requirements or our internal policies; enforce the terms and conditions that govern the Service; and prevent, identify, investigate and deter fraudulent, harmful, unauthorized, unethical or illegal activity, including cyberattacks and identity theft.
Health-related data, device data, location data, communication interaction data, online activity data, technical and diagnostic data
With your consent. In some cases, we may specifically ask for your consent to collect, use, or share your information for further purposes, if those purposes are not compatible with the initial purpose for which that personal information was collected.
Health-related data, device data, location data, communication interaction data, online activity data, technical and diagnostic data
| Purpose of Use | Categories of Consumer Health Data |
|---|---|
Service delivery and operations, including to provide, operate, and secure the Service (including to provide and manage patient support programs, safety and quality efforts), and communicate with you regarding the Service. | Health-related data, device data, location data, communication interaction data, online activity data, technical and diagnostic data |
Improvement and analytics, including to improve our Service and business and help us understand user activity on the Service, including which pages are most and least visited and how visitors move around the Service, as well as user interactions with our emails, and to develop new products and services. | Health-related data, device data, location data, communication interaction data, online activity data, technical and diagnostic data |
Marketing and advertising, including direct marketing by us and our third-party advertising partners in compliance with applicable law. | Health-related data, device data, location data, communication interaction data, online activity data, technical and diagnostic data |
Research and development, including to develop, analyze, and improve our products and services, to support pharmacovigilance and drug safety monitoring, and to conduct or support medical and scientific research. As part of these activities, we may create aggregated, de-identified, or other anonymous data from personal information. We may use this anonymous or de-identified data and share it with third parties for any lawful business purposes. | Health-related data, device data, location data, communication interaction data, online activity data, technical and diagnostic data |
Compliance and protection, including to comply with applicable laws, lawful requests, and legal process, such as to respond to subpoenas, court orders, investigations or requests from government authorities; protect our, your or others’ rights, privacy, safety or property (including by making and defending legal claims); audit our internal processes for compliance with legal and contractual requirements or our internal policies; enforce the terms and conditions that govern the Service; and prevent, identify, investigate and deter fraudulent, harmful, unauthorized, unethical or illegal activity, including cyberattacks and identity theft. | Health-related data, device data, location data, communication interaction data, online activity data, technical and diagnostic data |
With your consent. In some cases, we may specifically ask for your consent to collect, use, or share your information for further purposes, if those purposes are not compatible with the initial purpose for which that personal information was collected. | Health-related data, device data, location data, communication interaction data, online activity data, technical and diagnostic data |
Your Consumer Health Data choices
You may have certain rights to your Consumer Health Data under applicable laws. Any of the rights discussed below may be subject to certain limitations (for example, a monetary charge).
Withdraw consent. To the extent we rely upon your consent for either our collection or sharing of your Consumer Health Data, you have the right to withdraw such consent from any future collection or sharing.
Access and confirm. You have the right to ask us to confirm whether we have collected, shared or sold your Consumer Health Data. Further, you have the right to access (in other words, request a copy of) the Consumer Health Data that we have collected, shared or sold. You also have a right to access a list of all “third parties” (as applicable U.S. state laws define that term) and affiliates with whom we have shared or sold your Consumer Health Data and receive certain corresponding information.
Correction. You have the right to ask us to correct inaccuracies in your Consumer Health Data.
Deletion. You have the right to ask us to delete your Consumer Health Data.
Appeal. You have the right to appeal our denying a right you have attempted to exercise. We will provide details on how to appeal our denial in connection with such action.
To exercise your rights above and make a Consumer Health Data rights request, please email us at privacy@neurocrine.com, or via our online privacy request form. We may need to verify your identity in order to process your request. To confirm your identity, we may ask you to verify personal information we already have on file for you. If we cannot verify your identity based on the information we have on file, we may request additional information from you (such as government identification), which we will only use to verify your identity, and for security or fraud-prevention purposes.
Declining to provide information. We need to collect Consumer Health Data to provide certain services. If you do not provide the information we identify as required or mandatory, or if you request that any required Consumer Health Data be deleted or withdraw your consent for future collection or sharing of any required Consumer Health Data, we may not be able to provide those services.
Changes to this Consumer Health Data Privacy Notice
We reserve the right to modify this Consumer Health Data Privacy Notice at any time. If we make material changes to this Consumer Health Data Privacy Notice, we will notify you by updating the date of this Consumer Health Data Privacy Notice and posting it on the Service or other appropriate means. Any modifications to this Consumer Health Data Privacy Notice will be effective upon our posting the modified version (or as otherwise indicated at the time of posting). In all cases, your use of the Service after the effective date of any modified Consumer Health Data Privacy Notice indicates your acknowledging that the modified Consumer Health Data Privacy Notice applies to your interactions with the Service and our business.
How to contact us
Email: privacy@neurocrine.com
Website: www.neurocrine.com
Phone: 877-443-4108